WEST FARGO — The parents of a three-year-old boy recently diagnosed with a brain tumor have received the news they didn’t want to hear: their son has cancer.
Theodore “Teddy” Danielson’s tumor is grade 4, the most aggressive, said his mother, Jessica Danielson. Research is being done to more confidently pinpoint the cancer stage.
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His exact course of treatment is still being determined.
For now, Teddy and his parents, Jessica and Ross, are enjoying time at home after spending 23 straight days in the hospital.
“We are on a five day break from this unbelievable journey,” the boy’s mother wrote in a post on a GoFundMe account last week. The fund, set up by the boy's godparents, has raised nearly $28,000 as of Monday, Nov. 23.
Teddy is doing well at home, walking with little or no assistance, and getting back to climbing, slowly, she said.
“I do have moments when I forget we have so much more treatment to come,” his mom said.
The growth at the base of Teddy’s brain is a Primitive Neuroectodermal Tumor, a rare cancer that primarily affects young children.
Danielson said a lumbar puncture test of his spinal fluid came up negative for cancer, a bit of good news.
Teddy also had a port implanted in his chest, which means fewer pokes and pain for him, and easier access for lab draws and medications, she said.
A second surgery was done a few days later to remove as much of the quarter-sized tumor as possible.
Teddy was scheduled to start chemotherapy on Tuesday, Nov. 24.
That’s been put off, for now, as doctors plan the best course of treatment, which could include chemo, additional brain surgery to remove more of the tumor, radiation or a bone marrow transplant, Danielson said.
The family is asking for prayers, and for other families who may have gone through something similar to get in touch.
“We can and will do everything and anything possible to save our Teddy Bear,” Danielson said.