We see that you have javascript disabled. Please enable javascript and refresh the page to continue reading local news. If you feel you have received this message in error, please contact the customer support team at 1-833-248-7801.

ADVERTISEMENT

ADVERTISEMENT

Letter: Price-setting stifles innovation

Kotrba writes, "I believe more research and resources are needed if we’re ever to see a cure for all sorts of conditions, including genetic disorders like Huntington's disease. That’s why I’m disappointed by Congress’ latest attempts to pass Medicare negotiation policies in the next reconciliation package."

A person holds a letter with the text "letter to the editor" overlaid on the image.
We are part of The Trust Project.

The most challenging days of my life were the days I lost my mother and sister. They both passed away from Huntington's disease.

Huntington's disease is a brain disorder caused by a defective gene that progressively changes in the central area of the brain, which affect movement, mood and thinking skills.

Losing them both changed the way I look at medicine and access to care. I believe more research and resources are needed if we’re ever to see a cure for all sorts of conditions, including genetic disorders like Huntington's disease. That’s why I’m disappointed by Congress’ latest attempts to pass Medicare negotiation policies in the next reconciliation package.

Any legislation that could threaten patient access or the creation or development of new treatments should be a nonstarter in Washington. Just across our border in Canada, we’ve seen how price setting policies like this negatively impacts patient access and wait times for medicines. More challenges are the last thing families battling with a rare condition want right now.

Patients need more support from our elected officials, not more obstacles to their care. I hope our lawmakers think of families like mine who are in desperate need of answers to medical conditions.

ADVERTISEMENT

Lynn Kotrba lives in Moorhead.

This letter does not necessarily reflect the opinion of The Forum's editorial board nor Forum ownership.

What to read next
CEO Erin Prochnow shares what the YWCA wants for our community during Domestic Violence Awareness Month.
Kathy Cook writes, "It was sad this clinic was welcomed into Moorhead without even being required to get a license from the city, county or state."
Karry Kyllo of East Grand Forks, Minn., responds to a letter about columnist Mike McFeely written by Todd Gross of Fargo.
Tina Rennemo, the city clerk-treasurer in Baudette, Minn., writes, "I know some people are worried about the upcoming election. They are concerned elections are corrupt, their vote won’t be counted and the potential that improper votes will, or that something inappropriate is happening behind the scenes. I don’t share those concerns because I trust the process and I believe in the people who work tirelessly to make sure our elections are conducted with the highest level of integrity."